TANGO2 Conference - Orlando 2022
11 videos • 107 views • by TANGO2 Research Foundation The 2nd TANGO2 Family Conference was held from June 26 though 28, 2022, in Orlando, Florida. This 2.5 day event hosted by the TANGO2 Research Foundation brought together the TANGO2 disease community for insights, fellowship and discussion. For many families and children affected by the rare disease, the conference was one of the first opportunities to meet and engage with other affected families. Building these relationships is vital for combining efforts to advocate for research, treatment, therapy for this rare disease. The TANGO2 Research Foundation is incredibly thankful to have received a grant from the Chan Zuckerberg Initiative–as part of its Rare As One cohort– which designates funds for the specific purpose of hosting a family conference. Conference attendees heard the most up-to-date information about TANGO2 from leading experts. Family participation directly influenced future research initiatives for TANGO2.