22:44

22q & TANGO2 - Donna McDonald-McGinn

01:11

Meet our Holiday Ambassador Family, the Cohens!

14:00

"Can We Fix It?" by Kasha Morris

38:43

Panel Presentation - Building Blocks for a Cure: Clinical Trial Readiness in TDD

44:50

Natural History Study Update & Next Steps, Christina Miyake, MD, MS

45:46

TANGO2 Talk, featuring Leah Engbrecht, a Behavior Coach

46:01

Panel Presentation - Heart to Heart: Understanding Cardiac Challenges in TANGO2 Deficiency Disorder

36:48

Panel Presentation - Navigating Movement Disorders associated with TDD

44:12

Panel Presentation - Empowering the TANGO2 Community: Strength in Support

01:00:09

2024 Shine a Light on TANGO2 Celebration at TANGO2 Family Conference

27:05

B-Vitamins and Beyond with Nourhan Suleiman, RDN, LD

25:30

TANGO2 functions in the pathway of Acyl-CoA metabolism with Agustin Lujan, MD, PhD

30:07

Towards an understanding of the function of TANGO2 with Michael Sacher, PhD

15:28

PCOR/CER & its Importance in the Rare Disease Community with Courtney Clyatt, MPH

20:18

Zebrafish Models of TANGO2 deficiency for preclinical studies of TANGO2 Deficiency Disorder

31:13

Investigating TANGO2-Deficiency Disorder Phenotype and Mechanism in a C. elegans Model

16:51

TANGO2 Basics with Seema Lalani, MD

28:56

Keynote: From Athlete, to Patient, to Advocate with Rob Long, MS

26:13

A doctor's discovery ignites a child's legacy

41:11

Beyond the diagnosis: a doctor's heartfelt recollection of heartbreak to hope

03:05

2024 Shine a Light on TANGO2 Celebration Participant Recap

15:43

Igniting Hope Through Research

15:25

Uncharted youth: caregiving in the teen years

29:21

Nurturing Gratitude: A Journaling Guide for TANGO2 Caregivers

27:54

Between hope and fear: facing a potential diagnosis with a new pregnancy

40:45

Rare Care: Reducing Distress & Embracing Well-being

19:13

Patient Journey Stories [Part Five]: Metabolic Crisis & Impact

15:20

Patient Journey Stories [Part Six]: Sibling Symptom Variability

10:49

Patient Journey Stories [Part Four]: Early Diagnosis

17:40

Patient Journey Stories [Part Three]: 22q & TANGO2

41:08

2024 Shine a Light on TANGO2 Kickoff

02:48

Shine a Light on TANGO2 - Phoebe's Story

11:36

TANGO2 Patient Journey Stories [PART TWO]: Family Impact

12:20

TANGO2 Patient Journey Stories [PART ONE]: The Diagnostic Journey

03:29

2023 - Shine a Light on TANGO2: The Fryar Family Story

03:11:00

2023 TANGO2 Research Symposium

36:48

Diet and Nutrition for individuals living with TANGO2 deficiency disorder

01:17

2023 Shine a Light on TANGO2 Thank You Message

42:04

2023 Shine a Light on TANGO2 Celebration

52:46

2023 Shine a Light on TANGO2 Kickoff Recording from February 25, 2023.

00:45

Thank you for your support - from the Mitchell family

01:08

Giving Tuesday - Hanna Mitchell's story

00:46

More about Hanna Mitchell

01:02

Meet the Mitchell Family!

00:58

Giving Tuesday - Introducing Hanna Mitchell

01:00:26

TANGO2 Talk from July 30, 2022

29:54

Drug Screening for TANGO Deficiency & Emergency Certificate

33:23

Mitochondrial Dysfunction in TANGO2-Related Disorder; What is Next?

01:12:55

Question and Answer Session Moderated by Dr. Seema Lalani

23:51

Assessment of Metabolic Studies in TANGO2-Related Disorder

33:59

About the TANGO2 Research Foundation with Kasha & Mike Morris

51:52

DJ Icecat at the TANGO2 Family Conference in Orlando, Florida

37:55

It Takes Two to TANGO: The Search for Partners for TANGO2

19:38

2022 Shine a Light onTANGO2 Celebration at the TANGO2 Family Conference in Orlando, Florida.

27:00

TANGO2-Related Disorder 101

35:43

Building Our Understanding of TANGO2-Related Disorder from Gene to Child

26:02

Family perspectives and priorities in TANGO2-Related Disorder

01:11

Jake's progress at physical therapy

35:49

2022 Shine a Light on TANGO2 Kickoff Recording from February 26, 2022

08:41

Shine a Light on TANGO2 - Jake's Story