00:06
Intro*
02:13
Operation number 8
05:43
#joshhashope 2020
04:08
MPS AWARENESS 2018
03:58
joshhashope
04:54
JOSH HAS HOPE
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About
Hi, I'm Josh.
I'm 11 years old and I have an ultra rare genetic disorder called maroteaux Lamy syndrome (MPS VI)
It affects all my bones and organs but it doesn't stop me from having fun.
Its also a form of dwarfism, but I don't mind being small.
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