01:25:37

Myhre Research Family & Patient Q&A Session 5

01:28

How to Set Up A Fundraiser - Classy

54:29

Myhre Research Family & Patient Q&A Session 4

01:56

SMAD4 & Myhre Syndrome - Think Factory Manager!

01:13

Philadelphia MSF Conference 2024 Highlights

01:54:31

MSF In-person Conference 2024 - Sunday

03:22:16

MSF In-person Conference 2024 - Saturday Part 1

02:13:41

MSF In-person Conference 2024 - Saturday Part 2

39:30

Myhre Research Q&A Session 3

01:26:46

Myhre Research Q&A Session 2

48:30

Myhre Research Q&A Session 1

01:41

Cell Models For Myhre Syndrome

01:23

Myhre Syndrome Research: The Road to Treatment

44:00

Gut Health and Microbiomes Prof. Jack Gilbert - 2023 MSF Virtual Conference

37:17

Myhre Syndrome Research Update Dr. Mark Lindsay - 2023 MSF Virtual Conference

41:20

Navigating and Thriving in School Prof. Christine Peterson - 2023 MSF Virtual Conference

10:36

Opening Remarks - 2023 MSF Virtual Conferece

57:20

Myhre Doctors Virtual Panel - 2023 MSF Virtual Confernece

33:33

Hearing Loss Dr Angela Lin - 2023 MSF Virtual Conference

31:56

May We Talk About Autopsy Dr. Angela Lin - 2023 MSF Virtual Conference

01:41

Myhre Community Insight Lauren Neille - 2023 MSF Virtual Conference

08:38

Myhre Insight Melissa Syperek - 2023 MSF Virtual Conference

40:54

From Bench to Approval The Drug Development Process Dr Mark Lindsay - 2023 MSF Virtual Conference

46:34

Global Community Updates - 2023 MSF Virtual Conference

39:41

Genetics Dr Lisa Schimmenti - 2023 MSF Virtual Conference

35:08

NIH Immunology Research Update Dr Stella Hartono - 2023 MSF Virtual Conference

34:01

Myhre Zebrafish Research Update Dr Bert Calleweart - 2023 MSF Virtual Conference

42:39

Fostering Independence for Neurodiverse Populations Elise Wulff - 2023 MSF Virtual Conference

26:53

Myhre Guidelines for Myhre Syndrome Dr Angela Lin - 2023 MSF Virtual Conference

06:50

Closing Remarks - 2023 MSF Virtual Conference

00:57

Move for Myhre 2023

01:27

MSF August 2023 Update

02:37

A Day in the Life of Myhre

02:48

Patrick's Story - A Day in The Life of Myhre

33:46

Myhre Syndrome Psychiatry - Robin Thom

16:05

Brain and Spine Imaging - Eleanor Scimone -

19:32

Skin, Hair, Nails - Evelyn Lilly

03:10

Summer Seminar Series - Introduction by Kate Wears, President of Myhre Syndrome Foundation

17:40

Physical Therapy - Brigette Jason

31:04

Neuropsychology - Cole Hague

18:44

What's next after a diagnosis - Angela Lin

16:31

Lung & Sleep Related Issues - Bernard Kinane

39:19

Myhre Clinic Update - Angela Lin

20:37

Ophthalmology - Gena Heidary

32:36

Endocrine - Lynne Levitsky

22:29

Ear, Nose & Throat - Michael Cohen

19:21

Constipation - Sarah Kadzielski

13:41

Nephrology & Hypertension, Weizhen Tan

22:30

Ear, Nose & Throat (ENT), Michael Cohen

14:05

The Immune System & Myhre Syndrome

01:03

Jackie Lee - Myhre Syndrome Foundation Research Update

01:27

April and Alec demonstrate ASL

05:37

Conference Closing Session by Justin Smith

18:30

Pam Guerrerio FINAL

23:37

Cancer in Myhre Syndrome

12:56

Research - Creating A Mouse Model

30:00

ENT Problems in Myhre Syndrome by Michael Cohen

22:50

Musculoskeleton and Joints: What We Know by Dr Brunetti

38:11

Pulmonology: What We Know about Myhre Syndrome and Insights from other Disorders by Dr. Kinane

01:08:59

Genetics: Update on the MGH Myhre Syndrome Clinic by Dr. Angela Lin