03:10

Recap On My 10 Year High School Reunion with #chronicillness

01:19

Birthday Pneumonia?!

01:24

The Beginnings of my Tragic Garden 2024

01:44

Going to a MALL For The First Time In 10 Years

04:22

Copper Infusion Update ( It’s Not Great News )

01:40

She Use To Be Mine @sarabareilles @WaitressMusical “‘Hospital Cover “

01:01

Neurosurgery Referral Part 6

01:01

Neurosurgery Referral Part 5

01:45

I Saw My Future At IVIG

01:01

Question For Those With Mast Cell Activation Syndrome

01:42

Thoughts On My First Sleep Therapy Session #insomnia

03:33

Social Health Awards 2024

01:22

Nail Art With Worsening Weakness In My Left Hand #4thofjulynails

05:07

Why I Chose To Get A 3rd Piercing

02:52

Book Basket Party And Neuro Flare Chaos

01:25

I’m A Finalist In The “ Social Health Awards “ 🤯🥰 #patientadvocate

05:50

Our Brokenness And Gods Love

01:55

Craft Time During Copper Infusions #miniverse

06:32

Mothers Day and Motherhood , From Someone Who May Never Be One “

03:35

One Of My Favorite Stories About My Mom . Mothers Day 2024

05:15

FINALLLY Have An Answer On My “ Fractured (?) Foot !

01:17

Missed Chance to Meet Hunter Hayes

01:28

Noodles and Dumplings Co #foodreview

02:44

“Day In My Life “Unplanned Appointment

01:33

“ 5 Survive “ By Holly Jackson Book Review

03:36

Book Review “ The Reappearance of Rachel Price” by Holly Jackson

06:04

Fracture Misdiagnosed As A Tumor ? Foot Update

01:35

Garden Update Part 2

02:04

Starting My Little Garden #spring

02:05

Interesting Facts About CVID , MCAS, and Copper

03:40

Growth “ Sunday On A Monday “ #comefollowme

03:49

The Day After IVIG

03:43

IVIG Infusion Day Part 2

03:45

How Are We Suppose To Treat Those Who Are Different Than Us?

03:18

IVIG Infusion Day.. Part 1

01:36

My Entry For A Rare Disease Photography Contest

06:00

“ Benadryl and Chill “. Medical Update. ( Copper infusions and Eye Follow Up )

03:42

Why I Ended Up In The ER Monday

04:07

Hospital Mukbang , Copper Infusions Take 2 , Day 1

01:19

Happy Moments !

04:07

GRWM : Replace A 2 Week Heart Monitor

03:39

Come With Me To The ENT. ( possible auditory processing disorder )

05:18

My Second Meeting With My Med Student In The @GlobalGenesProject “ Rare Compassion Program “

04:02

SUPRISE Bouquet Subscription from “ Muz and Poppies “

03:01

Come Follow Me ( New Testament) Week 6

02:10

MCAS Could Explain My Life Threatening Allergy To Life Saving IVIG

02:53

A Day In My Life ( surprise scan edition )

03:01

Come Follow Me Week 5! ( New Testament 2023 )

02:17

@YesTheory mystery pack opening !

02:50

Come Follow Me Week 1 . Jan 2023

10:18

Share The Good “ The Chronically Care Project “

07:33

Vegas With Pneumonia

09:21

Question and Answer With my Big Sister

04:53

Small Town 4th of July Celebration

06:42

Hot Air Balloon Festival

06:10

My First Week At The New Infusion Center

04:57

Photo Prints For Sale at the “ Eyes In The Skies “ Festival

06:10

Easter Thought Sunday on a Monday

02:07

Jeffree Star Lipstick Review.

08:44

My FIRST Art Show , and a Day at the Zoo