52:15
Reproductive Health and Acute Hepatic Porphyrias
01:11
How many calories should patients with Acute Intermittent Porphyria consume?🤔
01:03:15
Nutrición y Estilo de Vida en Porfiria
01:03:38
Nutrition and Lifestyle in Porphyria
22:52
Cutaneous Porphyrias Bonus Questions- What's UP Doc Live? February 2024
43:45
Acute Porphyria Bonus Questions- What's UP Doc Live? February 2024
27:54
Evidence Based Guidelines EPP and XLP with Dr. Amy Dickey
12:09
AHP Power Study: Validating Patient Quality of Life with Dr. Rebecca Karp Leaf
02:20
Join us for Porphyria Patient Day- October 29, 2023
20:09
Bitopertin UPdate with Dr. Bonkovsky
06:53
Importance of United Porphyrias Association
08:02
Jennifer's EPP Story- NIH Rare Disease Day 2023
02:17
PAW 2022- #PorphyriaTogether
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About
The United Porphyrias Association is committed to improving the quality of life of the porphyria community and is relentlessly focused on advancing disease awareness, research, and therapies in all of the Porphyrias.
We are a registered 501(c)(3).
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