VEDS
74 videos • 320 views • by The Marfan Foundation
1
VEDS Emergencies: Know When to Go & What to Say
The Marfan Foundation
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2
Maia Gets Real: Educating Everyone About Appropriate VEDS Treatment
The Marfan Foundation
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3
VEDS Management & Genetics Basics
The Marfan Foundation
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4
Pulmonary Concerns & Medical Management in VEDS
The Marfan Foundation
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5
Aging with a Connective Tissue Condition
The Marfan Foundation
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6
VEDS Research Q&A
The Marfan Foundation
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7
Ryans 2023 Year-End Message for The VEDS Movement
The Marfan Foundation
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8
Research Matters: The Foundation is a Family
The Marfan Foundation
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9
Dr. Eric Roselli on Aortic Root Surgery in Connective Tissue Conditions
The Marfan Foundation
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10
2023 Voices for Victory - De la Garza Family
The Marfan Foundation
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11
Dr Juan Bowen Síndromes de Marfan, Loeys Dietz, Ehlers Danlos Vascular
The Marfan Foundation
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12
Kristi shares tips for sharing your VEDS story to save lives.
The Marfan Foundation
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13
Rosemarie Talks Avoiding Overwhelm & Emergency Preparedness
The Marfan Foundation
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14
Rosemarie's Key Tips for VEDS Emergency Preparedness
The Marfan Foundation
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15
Get To Know Local 1st Responders, Save VEDS Lives
The Marfan Foundation
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16
Creative Ways to Stay in Touch with Local 1st Responders About VEDS
The Marfan Foundation
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17
Share Your VEDS Story with 1st Responders, Save Lives
The Marfan Foundation
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18
Mom shares hope for her daughter's future alongside VEDS diagnosis
The Marfan Foundation
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19
Joaquin's Story of Life After Aortic Dissection
The Marfan Foundation
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20
Dawn & Ashley Rose: Raise VEDS Awareness, Stay Connected, Live Life to its Fullest
The Marfan Foundation
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21
Genetic Testing: US and Europe
The Marfan Foundation
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22
An Introduction to The VEDS Movement
The Marfan Foundation
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23
The DiSCOVER Trial for VEDS with Acer Therapeutics
The Marfan Foundation
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24
Vascular Surgery
The Marfan Foundation
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25
Genetic Update: Marfan, Loeys-Dietz, VEDS
The Marfan Foundation
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26
Setting Up a Care Team
The Marfan Foundation
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27
Emergency Planning
The Marfan Foundation
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28
New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you?
The Marfan Foundation
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29
Exercise and Marfan, LDS, and VEDS: The Latest Research
The Marfan Foundation
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30
A gene, variant and mechanism for a potent protective modifier of vascular Ehlers-Danlos syndrome
The Marfan Foundation
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31
Endothelin-1 contributes to vascular rupture risk in Vascular Ehlers Danlos syndrome mice
The Marfan Foundation
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32
Interrogation of the Role of Androgens & Their Antagonists in the Pathogenesis & Treatment of VEDS
The Marfan Foundation
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33
VEDS Research Update: Gestational age as a proxy to arterial fragility in Vascular Ehlers-Danlos
The Marfan Foundation
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34
VEDS Research Update: A gene, variant and mechanism for a potent protective modifier of VEDS
The Marfan Foundation
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35
2022 VEDS Birthday Bash
The Marfan Foundation
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36
Aortic Disease Research (9/19/22)
The Marfan Foundation
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37
Morristown Hospital Pediatric Grand Rounds Vascular Ehlers-Danlos Syndrome
The Marfan Foundation
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38
Living with an Ostomy and VEDS: Personal Perspectives
The Marfan Foundation
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39
Diagnosis 2.0: Re-processing your diagnosis as an adult
The Marfan Foundation
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40
Beyond the Selfie: Body Image and Life with a Connective Tissue Condition
The Marfan Foundation
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41
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine
The Marfan Foundation
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42
Understanding Clinical Trials
The Marfan Foundation
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43
Personal Perspectives Panel: Physical Activity & Exercise
The Marfan Foundation
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44
VEDS Research Update
The Marfan Foundation
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45
Session 1 - Investigation of VEDS Therapeutics and Interventions Using Mouse Models - DEFY VEDS 2021
The Marfan Foundation
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46
Introduction- 4th DEFY VEDS Scientific Meeting 2021
The Marfan Foundation
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47
Personal Perspectives Panel: Dads on Living with Marfan, LDS, and VEDS
The Marfan Foundation
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48
Creating a Care Team for VEDS (Vascular Ehlers-Danlos Syndrome)
The Marfan Foundation
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49
Adult Cardiology Issues: Your Questions Answered
The Marfan Foundation
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50
What’s in Your VEDS Family Tree? Genetics, Variability, Outcomes (September 8, 2020) E3 Summit
The Marfan Foundation
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51
Viewing Your VEDS Arterial Tree (September 1, 2020) E3 Summit
The Marfan Foundation
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52
Pre-Implantation Genetics Diagnosis and Pregnancy (VEDS) (September 11, 2020) E3 Summit
The Marfan Foundation
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53
Medical Insurance and Disability (September 11, 2020) E3 Summit
The Marfan Foundation
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54
Can I Do This? Your Exercise Questions Answered (September 12, 2020) E3 Summit
The Marfan Foundation
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55
Gut Wrenching! LDS & VEDS Colon Issues (August 29, 2020) E3 Summit
The Marfan Foundation
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56
Teen Panel (August 29, 2020) E3 Summit
The Marfan Foundation
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57
Genetics of VEDS (September 1, 2020) E3 Summit
The Marfan Foundation
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58
Creating a School Safety Plan for Marfan/VEDS/LDS (August 28, 2020) E3 Summit
The Marfan Foundation
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59
Bullying: Tools and Mindset (September 2, 2020) E3 Summit
The Marfan Foundation
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60
ABCs of VEDS (August 27, 2020) E3 Summit
The Marfan Foundation
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61
Surveillance, Management and Medical Treatment of VEDS (September 2, 2020) E3 Summit
The Marfan Foundation
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62
Adjusting to a New Normal (August 31, 2020) E3 Summit
The Marfan Foundation
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63
Building Resilience: Healthy Body, Mind, and Spirit (August 26, 2020) E3 Summit
The Marfan Foundation
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64
Management of VEDS in Children (September 9, 2020) E3 Summit
The Marfan Foundation
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65
The Art of VEDS Vascular Surgery: Critical Questions Answered (August 27, 2020) E3 Summit
The Marfan Foundation
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66
Gastrointestinal Surgery for VEDS: Your Critical Questions Answered - (August 25 2020) E3 Summit
The Marfan Foundation
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67
Breathe Easy - Marfan/LDS/VEDS (September 8, 2020) E3 Summit
The Marfan Foundation
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68
Coping with Medical Traumas (September 11, 2020) E3 Summit
The Marfan Foundation
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69
COL1A1 Mutations
The Marfan Foundation
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70
Vascular Ehlers-Danlos Syndrome: Where We Are and Where We Are Going
The Marfan Foundation
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71
Personal Perspective: Kristi Posival (VEDS)
The Marfan Foundation
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72
Genetics and VEDS
The Marfan Foundation
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73
Lung Health and VEDS
The Marfan Foundation
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74
Pregnancy and Women's Health in VEDS
The Marfan Foundation
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