Teen Space
15 videos • 2,720 views • by The Marfan Foundation
1
How do you cope with chronic pain?
The Marfan Foundation
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2
How has not being able to do certain physical activities impacted you?
The Marfan Foundation
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3
How has the Marfan diagnosis affected your family?
The Marfan Foundation
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4
What are some of the emotional challenges you face and how do you cope with them?
The Marfan Foundation
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5
What are the questions people ask you, and what should they understand about having Marfan syndrome?
The Marfan Foundation
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6
What is it like having to take medications on a regular basis?
The Marfan Foundation
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7
What is it like to get an echocardiogram?
The Marfan Foundation
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8
When and how do you decide to tell people about having Marfan syndrome?
The Marfan Foundation
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9
How can The Marfan Foundation conference help families with Marfan Syndrome?
The Marfan Foundation
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10
Teen Perspective on The Marfan Foundation's Annual Family Conference
The Marfan Foundation
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11
Diagnosis 2.0: Re-processing your diagnosis as an adult
The Marfan Foundation
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12
Camp Victory in Georgia, 2023: Reunion Video
The Marfan Foundation
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13
Camp Victory 2023 in Georgia #themarfanfoundation
The Marfan Foundation
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14
Camp Victory California, 2023 #themarfanfoundation
The Marfan Foundation
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15
Camp Victory for Kids 24 in Georgia
The Marfan Foundation
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