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You and MDS @UCi9Z_nJCSb3t6VUs8qEwZ7g@youtube.com

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This channel is created for patients with MDS and their fami


04:25
Understanding Clinical Trials in Myelodysplastic Syndromes (MDS)
04:07
Including Everyone in Clinical Trials for Myelodysplastic Syndromes (MDS)
02:01
What is a clinical trial for MDS? Why are they important?
03:49
How are MDS clinical trials carried out? What should I expect?
02:36
What are the benefits of being in an MDS clinical trial? What are the risks?
01:48
How will my safety and privacy be protected if I join a clinical trial?
01:34
If I feel uncomfortable during a clinical trial am I obligated to participate?
02:19
How can I find an MDS clinical trial that is appropriate for me?
01:51
Why is diversity important in MDS clinical trials? What benefits do diverse clinical trials provide?
02:59
Why are some MDS patients not participating in clinical trials? What are the barriers to enrollment?
05:10
Understanding Genetic Mutations in MDS
05:15
Mutation-Driven Therapy in MDS
02:37
Becky's story: What is your MDS gene mutation profile? When and how were you tested for it?
03:18
Which genetic mutations and cytogenetic changes have a more favorable response to MDS treatment?
03:00
Donna's story: What is your MDS gene mutation profile? When and how were you tested for it?
01:06
Holly's story: What is your MDS gene mutation profile? When and how were you tested for it?
01:41
Becky's story: What advice do you have for other MDS patients about genetic testing?
01:42
Donna's story: What advice do you have for other MDS patients about genetic testing?
00:58
Holly's story: What advice do you have for other MDS patients about genetic testing?
02:02
Becky's story: How has your gene mutation profile affected your MDS treatment experience?
01:49
Donna's story: How has your gene mutation profile affected your MDS treatment experience?
01:34
Holly's story: How has your gene mutation profile affected your MDS treatment experience?
01:33
Becky's story: What has been the greatest success with your MDS treatment?
01:28
Donna's story: What has been the greatest success with your MDS treatment?
01:01
Holly's story: What has been the greatest success with your MDS treatment?
01:33
Becky's story: What has been the greatest challenge with your MDS treatment?
01:24
Donna's story: What has been the greatest challenge with your MDS treatment?
01:04
Holly's story: What has been the greatest challenge with your MDS treatment?
02:34
How does my genetic mutation profile impact the treatment of my MDS?
02:23
What are mutation-driven MDS treatments?
01:37
What are the goals of mutation-driven MDS treatments?
02:08
How does my MDS genetic mutation permit personalized treatment decisions?
02:46
What questions should I ask my doctor about mutation-driven MDS treatments?
01:58
What are the challenges to mutation-driven MDS treatment?
04:00
When should genetic testing for MDS be done?
01:56
How do MDS genetic mutations influence decisions for stem cell transplant?
01:58
What is a genetic mutation, a biomarker, and cytogenetic analysis in MDS?
01:29
Why is understanding genetic mutations and cytogenetics in MDS important?
01:39
Is an MDS-related genetic mutation something I was born with or something that occurred later on?
02:08
How do my genetic mutations influence MDS risk?
01:48
How does genetic testing help in MDS diagnosis?
01:44
How is genetic testing for MDS carried out?
02:17
Which genetic mutations and cytogenetic changes have a less favorable response to MDS treatment?
02:12
Which MDS genetic mutations are most likely to cause relapse?
01:48
What questions should I ask my doctor about MDS genetic testing?
04:51
Understanding Erythropoiesis
06:46
ASH 2020 Abstract - You And MDS - Animated Patient’s Guide
07:10
Understanding MDS-related Anemia
06:33
Managing and Treating MDS-related Anemia
01:44
What is MDS-related anemia? What causes it?
01:37
How is MDS-related anemia diagnosed?
04:12
Barry's story: What advice do you have for other patients on their journey with MDS-related anemia?
05:19
Barry: What have been the greatest successes and challenges with MDS-related anemia treatment?
02:54
Barry’s story: How did you find out you had MDS-related anemia?
01:58
Barry’s story: What has been the biggest challenge with your MDS-related anemia?
02:16
Barry’s story: How was your MDS-related anemia diagnosed?
01:19
Abby's story: What has been the biggest challenge with your MDS-related anemia?
01:30
Abby: What have been the greatest successes and challenges with your MDS-related anemia treatment?
01:29
Abby's story: How did you find out you had MDS-related Anemia?
02:38
Abby's story: What advice do you have for other patients on their journey with MDS-related anemia?