08:59

Medical ID bands are life-saving for Periodic Paralysis

03:05

I am more than just HKPP. I am a person. | Documentary Clip | PPA

04:57

My journey to getting diagnosed with HKPP | Documentary Clip | "I Never Fake It: A Medical Odyssey"

01:08:11

I Never Fake It: A Medical Odyssey | Full Documentary | PPA

01:37

"I Never Fake It" Documentary TRAILER | A Medical Odyssey | PPA

41:55

2023 aanem annual meeting dr karen suetterlin mp4 1080p

43:03

2023 aanem annual meeting dr stephen cannon mp4 1080p

01:58

Giving Tuesday 2023 PPA Video

44:26

2023 PPA Conference: Dr Chuquilin: Medication options for Primary Periodic Paralysis 002

47:37

2023 PPA Conference: Dr Cannon: What is Primary Periodic Paralysis 001

35:20

2023 PPA Conference: Anita Dharwadkar: Periodic Paralysis and Nutrition 005

45:15

2023 PPA Conference: Dr. Harr: Navigating the World of Anesthesia Medications for Periodic Paralysis

49:27

2023 PPA Conference: Dr Cannon, Therapeutic Pipeline for Primary Periodic Paralysis 004

45:21

2023 PPA Conference: Dr Cannon, Potassium and Periodic Paralysis Secondary Periodic Paralysis 003

43:59

2023 PPA Conference: Sandy Drenner, Mind Body Connection Fact or Fiction 006

03:37

Kirsten and Janine PPP Mentor Connect™ and Community Impact CS 1

03:44

FINAL Dennis PPA Video KEVEYIS 08 01 2023

02:47

Vahe PAM Experience and Patient Support in PPP CS 1

03:00

KEVEYIS Joe PAM Experience July2023

01:18:04

Medications and Periodic Paralysis with Dr. Chuquilin

01:31:42

The role genetic testing plays in diagnosing PPP -- a LIVE Webinar with Dr. Cannon

12:33

Most FAQ About Periodic Paralysis Part 2 | Ask The Expert Ep 08

09:25

Most FAQ's About Periodic Paralysis | Ask The Expert Ep 07 | Part 1 of 2

20:28

Andersen Tawil Syndrome | PPA SUMMIT 2021 Supercut #6

31:55

CRISPR Editing for Rare Disease, Periodic Paralysis | PPA SUMMIT 2021 Supercut #5

36:47

Paramyotonia Congenita - An Expert Discussion | PPA SUMMIT 2021 Supercut #4

26:16

Family Genetic Testing Finds SCNA4A Variant Defect | PPA SUMMIT 2021 Supercut #3

40:26

Safe Anesthesia for Periodic Paralysis Patients During Surgery | PPA SUMMIT 2021 Supercut #2

29:30

Repurposing A Drug for Preventing Attacks of Periodic Paralysis | PPA SUMMIT 2021 Supercut #1

05:43

Sharing | #GivingTuesday | Giving A Voice By Sharing | #GivingAVoice For Rare Diseases

05:53

Vulnerability | #GivingTuesday | Giving A Voice With Vulnerability | #GivingAVoice For Rare Diseases

05:11

Educating | #GivingTuesday | Giving A Voice By Educating | #GivingAVoice For Rare Diseases

04:46

Advocating | #GivingTuesday | Giving A Voice By Advocating | #GivingAVoice

05:57

#GivingTuesday | Giving A Voice To Rare Diseases | #GivingAVoice

01:02:43

Ask The Expert LIVE! with Dr. Cannon | Webinar Replay

09:06

What is NormoPP? Why is my blood work never out of normal range? | Ask The Expert EP06

07:10

Two Early Periodic Paralysis Patients Re-unite | Before the PPA | You're Not Alone EP08

09:22

What is VUS (Variant of Unknown Significance) in Genetic Test Results? | Ask The Expert EP05

10:19

(Part 2 of 2) Overcoming Two Rare Diseases - EDS (Ehlers-Danlos Syndrome) & PP (Periodic Paralysis)

07:57

Overcoming Two Rare Diseases - EDS (Ehlers-Danlos Syndrome) & PP (Periodic Paralysis)

05:25

My Chronic Rare Disease Journey | Cienna's Story | A Rare Adventure EP08

09:55

PP Patient Receives New Genetic Test Results - Shocking! | A Rare Adventure EP07

10:51

Service Dogs for Periodic Paralysis, Disabled | You're Not Alone EP07

09:23

Service Dogs for Periodic Paralysis, Disabled | You're Not Alone EP06

08:43

Genetic Research for Periodic Paralysis, Rare Disease | What, How, Why? Part 2 | Ask The Expert EP04

07:46

Genetic Research For Periodic Paralysis, Rare Disease | What, How, Why? Part 1 | Ask The Expert EP03

04:18

PPA Global Conference | Meet the Expert Doctors, Others with Periodic Paralysis, Get Answers

07:27

Rare Disease Advocate Shares Family Story | A Rare Adventure EP 06

12:40

Familial Periodic Paralysis & Congenital Myasthenic Syndrome | A Rare Adventure | Jeanette's Story

06:36

Positive Attitude Living With Periodic Paralysis | You're Not Alone EP 05

07:11

Permanent Muscle Loss or Weakness from Periodic Paralysis | You're Not Alone EP 04

12:39

Discovering You Have A Rare Disease | Monica's Story Part 2 of 2 | A Rare Adventure EP 04

11:51

Path To Discovering You Have A Rare Disease | Monica's Story Part 1 of 2 | A Rare Adventure EP 03

06:54

Caregivers, Family & Friends for Periodic Paralysis | You're Not Alone EP 03

22:13

Different Types of Periodic Paralysis | Neurologist Lists Various Forms Of Rare Disease | Ask The Ex

07:28

Find The Right Doctor For You | Bethany's Story | A Rare Adventure Ep 02

40:24

Therapeutic Horseback Riding for Children with Periodic Paralysis

05:12

Top 5 Things To Know Living with Periodic Paralysis | You're Not Alone EP 02

08:08

Weak Legs, Eating Carbs, Potassium & Paramyotonia Congenita | Ask The Expert Ep 01

02:07:21

Love, Lust, and Trust Creating Your Ideal Relationship when you have Periodic Paralysis