My name is Paul Eddington. I have pseudomyxoma peritonei from an appendiceal primary. I'm 54. I was first diagnosed in April 2023. Initially, my Peritoneal Cancer Index (PCI) was rated as 39/39. I completed 6 rounds of chemotherapy on the FOLFOX6 regimen. At the end of round 6, my CEA and CA19-9 numbers were higher than when I started. The chemo didn't work for me.
In Oct 2023 I underwent the CRS+HIPEC+EPIC operation at St George Hospital in NSW under the guidance of Prof David Morris. The operation successfully removed most of my cancer, but has left me with a permanent ileostomy bag.
In early 2024 I started to feel the effects of peripheral neuropathy from the FOLFOX treatment. My feet are in constant pain to the point that I have trouble sleeping and standing. This is my current challenge.
In July 2024 my blood tumour markers were very elevated, and my CT scans showed a recurrent of the cancer so I returned to St George Hospital for a second peritonectomy.