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The Marfan Foundation @UC3-ahz7n98FAgCBSE1zilfw@youtube.com

6.2K subscribers - no pronouns :c

We are a nonprofit organization that empowers people living


01:29:40
Using Mindfulness to Increase Joy and Decrease Stress with Tom Bassarear
01:13:49
Managing HTAD: Key Insights from the 2024 ESC Guidelines
01:01
Pasos a seguir cuando se recibe un diagnóstico con Claudia Algaze, MD
00:57
Steps to Take When Given a Diagnosis with Claudia Algaze, MD
00:52
Características del síndrome vascular de Ehlers-Danlos con Claudia Algaze, MD
00:48
Characteristics of Vascular Ehlers-Danlos Syndrome with Claudia Algaze, MD
01:01
Diferencias entre el síndrome de Marfan y el síndrome de Loeys-Dietz con Claudia Algaze, MD.
00:56
Differences Between Marfan Syndrome and Loeys-Dietz Syndrome with Claudia Algaze, MD.
01:01
Médicos detectando los signos del síndrome de Marfan con Claudia Algaze, MD.
00:44
Doctors Spotting the Signs of Marfan Syndrome with Claudia Algaze, MD.
57:36
Integrating Mental Health Screening into Aortopathy Care
06:57:28
Simposio Regional en Puerto Rico: Mejorando Su Vida con Marfan, Loeys-Deitz y VEDS
01:01:46
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy
01:12:02
VEDS Emergencies: Know When to Go & What to Say
01:03:56
Tromsø Aorta 2024 Recap with Dr. Kim Eagle
02:07
Because of You Dreams Come True
01:05
Maia Gets Real: Educating Everyone About Appropriate VEDS Treatment
02:47
Real Reels - Angelo Nania Jr.
51:13
Mindfulness Series #2: Mindful Arts for Adults
20:38
Oslo Symposium: Multidisciplinary Care & Rehab. for Patients with HTAD & VEDS with Dr. Thy Thy Vanem
35:05
Oslo Symposium: Physical Activity & Conn. Tissue Conditions with Dr. Alan Braverman
31:08
Oslo Symposium: Ongoing Care for Marfan, LDS, and VEDS with Dr. Nina Riise
38:19
Oslo Symposium: Prophylactic Aortic Surgery/David Procedure with Dr.John-Peder Escobar
31:59
Oslo Symposium: The Latest on Taking Care of the Aorta with Dr. Kim Eagle
24:43
Oslo Symposium: Overview of the Conditions/Differential Diagnosis with Dr. Juan Bowen
21:05
Diagnosis and Treatment of Aortic Dissection in the ER: Part 2
15:54
Diagnosis and Treatment of Aortic Dissection in the ER: Part 1
01:31
When Do We Treat an Aortic Dissection?
04:48
Remembering Flo Hyman
01:13
Join Carolin at the London Patient Symposium
05:55
Camp Victory for Kids 24 in Georgia
04:12
2024 Voices for Victory - Brooke Pulliam
04:14
2024 Voices for Victory - Flanagan Family
03:26
2024 Voices for Victory - Padilla Family
46:31
Staying Healthy & Exercising Safely
01:07
Pediatric Activity Guidelines Short
03:34
Andrew Gets Real #loeysdietzrealreels
01:03
Kelly Gets Real - Short
06:00
Kelly Gets Real for LDS Awareness Month 2024
50:18
VEDS Management & Genetics Basics
55:15
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome
56:15
Pulmonary Insights from the LDS Natural History & Genetics of Food Allergy & Related Cond. NIH Study
55:51
US Celiprolol Trial Update
01:08:52
Advocating for Yourself & Others
55:27
Creating a Care Team for LDS
51:09
Insights on Ocular Management for Marfan Syndrome
43:31
Pulmonary Concerns & Medical Management in VEDS
52:35
Navigating GI Management in LDS
56:29
Mental Health Issues: Recognize the Signs & How to Get Help
58:33
Options for Pain Management
53:06
Family Planning
57:30
Balancing Mental & Physical Health
01:01:24
Emergency Preparedness & Coping with Crisis
41:47
Scoliosis Management & Surgical Options for Marfan Syndrome
01:08:13
Understanding & Managing the Impact of Medical Trauma
01:00:01
AI-Powered Facial Analysis for Early Diagnosis of Genetic Aortopathies
03:53
Carlos Morales's Real: Advocating to Spare Families Tragedy
53:11
Aging with a Connective Tissue Condition
01:02:34
Navigating the US Health Insurance Landscape
01:13
Tammy Gets Real About Life with Loeys-Dietz Syndrome #loeysdietzrealreels